Well, it is over, surgery went very well. On September 1, I arrived at the hospital at 5:30My surgeon decided to do it laproscopically instead of opening me up as originally discussed. I guess this is good; it eliminates a lot of healing and pain. I am having some issues with my new colostomy condition, but learning how to manage. I am hoping things will get better the longer I have to work with all of it.
I am healing as they say I should be. Still a lot of pain. Sleeping a lot and taking a lot of medicine. Hoping I will get better soon.
Tuesday, September 15, 2009
Wednesday, September 2, 2009
Post Surgery
This is Jordan, first off mom is doing great!!! This blog won't be near as entertaining and intersting as mom's blogs but I will do my best!!
At 5:15 moms entourage headed across the street from the hotel to the hospital. This included mom and dad me and the boys and all of moms siblings Jackie, Jane, Tony and his wife Elizabeth, and Grandm and Grandpa Dangler. We arrived at 5:30 and she was taken back to be registered and to get things started. We said our good lucks and see you laters and she was actually taken back to surgery yesterday at 7:26 (that is what the nurse's stations job was, tell the Doctor's what time it was) and at about 8:40 she was under and surgery began. At 9:30ish a nurse made rounds to update the waiting families on how patients were doing. Our update was good ( Mom was handling the anestetics well and Dr. Robb was doing well too, and he was still performing laproscopic surgery and she had not been opened up yet!) Our second update was at about 11ish, and again the news was good ( Dr. Robb was almost done and would come out and update us on the out come of surgery but mom was still handling everything well) At 11:30 she was done with surgery and we talked to Dr. Robb at about 11:40. This was the most nerve racking part actually hearing what they had to say about the surgery.
Dr. Robb did not go into great detail about what all went on in surgery. He said that surgery went as he had assumed and suspected it would with no big surprises or changes. He told us he took all of the anus and rectum and was unable to reconnect her to function naturally, however the solostomy procedure went well. He also was able to leave all other surround organs intact, except for a small protion of the vaginal wall that was also removed. He did reassure us that this would have no negative long term effects. The really good news was that he was able to do the entire suregery laproscopically which is not what we had expected but were very pleased to here, as was mom. He told us he removed all of the cancer that he could see and feel and was very sure of his job being complete but he did say that its not the cancer we see and feel that we worry about it is those cells we can't see and feel. That is why she will still have chemotherapy follow recovery from surgery. The meeting with Dr. Robb was breif and to the point... it was a lot to handle.
From surgery mom went to recovery where she continued to do very well! She was out of surgery and recovery and to a private room by 1:15. She was very grougy and drugged but not doing to bad. She was in trumendous pain and was given a morphine drip on a 10 minute interval button released IV. She was weak and would ask us to push it as often as it was available! She slept on and off most of the day but of course it was not peaceful. People, nurses, and doctors were in and out constantly. By the evening mom wanted to get out of bed and did sit in a chair for about 15 minutes which was great that she had the energy and motivation to do this.
We took shifts staying with her throughout the night. She slept fairly well and was able to come out of the anestetics enough to ask some good questions. She was interested about her incisions and her stoma(the opening for the colostomy). At that time my Aunt Elizabeth was in the room. Elizabeth is getting her nursing degree and was really great explaining things to mom and helping her better understand some of the things going on! Elizabeth has seen a lot of stomas and what we have all seen online or in books makesus believe that mom has a great stoma!! Me not being an expert,thinks it looks AWESOME!!! The incisions are practically non exsistant from the ones that are visible. The scars will be small marks when they heal. She will only have the spot above her belly button and another small small spot for the drain tubes they have inserted. Most of the stitches are internal and she won't have to have the external ones removed becuase they will dissolve.
Mom was ready to start eating solid foods last night but was not allowed ANYTHING!! Which did not thrill her. This morning she was moved to a clear liqiud diet and had some apple juice, popsicle, and a little jello. This did the job until this evening when she was able to move to a all liquid diet and she was able to have butterscotch pudding, and cream of wheat, and chocolate milk. This was little more her style.
She is ready to take a walk now. Dr. Robb said this would be good for her. She is feeling up for this and feeling stronger and has a little more energy! They think she will probably be here for the weekend and head home beginning of the week.
I think this is pretty much everything. I will blog again if there is something I have left out.
If people are wanting to bring out food you can call Sandy Kenyon or Becky Lehe. They will help get a schedule together so there isn't multiple meals at a time.
Thank you all for your support, well wishes, and prayers. She is such a pro you all should see her!!! She really is doing so well!!
At 5:15 moms entourage headed across the street from the hotel to the hospital. This included mom and dad me and the boys and all of moms siblings Jackie, Jane, Tony and his wife Elizabeth, and Grandm and Grandpa Dangler. We arrived at 5:30 and she was taken back to be registered and to get things started. We said our good lucks and see you laters and she was actually taken back to surgery yesterday at 7:26 (that is what the nurse's stations job was, tell the Doctor's what time it was) and at about 8:40 she was under and surgery began. At 9:30ish a nurse made rounds to update the waiting families on how patients were doing. Our update was good ( Mom was handling the anestetics well and Dr. Robb was doing well too, and he was still performing laproscopic surgery and she had not been opened up yet!) Our second update was at about 11ish, and again the news was good ( Dr. Robb was almost done and would come out and update us on the out come of surgery but mom was still handling everything well) At 11:30 she was done with surgery and we talked to Dr. Robb at about 11:40. This was the most nerve racking part actually hearing what they had to say about the surgery.
Dr. Robb did not go into great detail about what all went on in surgery. He said that surgery went as he had assumed and suspected it would with no big surprises or changes. He told us he took all of the anus and rectum and was unable to reconnect her to function naturally, however the solostomy procedure went well. He also was able to leave all other surround organs intact, except for a small protion of the vaginal wall that was also removed. He did reassure us that this would have no negative long term effects. The really good news was that he was able to do the entire suregery laproscopically which is not what we had expected but were very pleased to here, as was mom. He told us he removed all of the cancer that he could see and feel and was very sure of his job being complete but he did say that its not the cancer we see and feel that we worry about it is those cells we can't see and feel. That is why she will still have chemotherapy follow recovery from surgery. The meeting with Dr. Robb was breif and to the point... it was a lot to handle.
From surgery mom went to recovery where she continued to do very well! She was out of surgery and recovery and to a private room by 1:15. She was very grougy and drugged but not doing to bad. She was in trumendous pain and was given a morphine drip on a 10 minute interval button released IV. She was weak and would ask us to push it as often as it was available! She slept on and off most of the day but of course it was not peaceful. People, nurses, and doctors were in and out constantly. By the evening mom wanted to get out of bed and did sit in a chair for about 15 minutes which was great that she had the energy and motivation to do this.
We took shifts staying with her throughout the night. She slept fairly well and was able to come out of the anestetics enough to ask some good questions. She was interested about her incisions and her stoma(the opening for the colostomy). At that time my Aunt Elizabeth was in the room. Elizabeth is getting her nursing degree and was really great explaining things to mom and helping her better understand some of the things going on! Elizabeth has seen a lot of stomas and what we have all seen online or in books makesus believe that mom has a great stoma!! Me not being an expert,thinks it looks AWESOME!!! The incisions are practically non exsistant from the ones that are visible. The scars will be small marks when they heal. She will only have the spot above her belly button and another small small spot for the drain tubes they have inserted. Most of the stitches are internal and she won't have to have the external ones removed becuase they will dissolve.
Mom was ready to start eating solid foods last night but was not allowed ANYTHING!! Which did not thrill her. This morning she was moved to a clear liqiud diet and had some apple juice, popsicle, and a little jello. This did the job until this evening when she was able to move to a all liquid diet and she was able to have butterscotch pudding, and cream of wheat, and chocolate milk. This was little more her style.
She is ready to take a walk now. Dr. Robb said this would be good for her. She is feeling up for this and feeling stronger and has a little more energy! They think she will probably be here for the weekend and head home beginning of the week.
I think this is pretty much everything. I will blog again if there is something I have left out.
If people are wanting to bring out food you can call Sandy Kenyon or Becky Lehe. They will help get a schedule together so there isn't multiple meals at a time.
Thank you all for your support, well wishes, and prayers. She is such a pro you all should see her!!! She really is doing so well!!
Sunday, August 30, 2009
Hi everyone,
Before I get started, I have to tell you all about some exciting information that I want to share. My daughter, Jordan has been dating a young man, Aaron Nally, from Benton County (Tri-County graduate) for around 8 months. On Friday night, Aaron proposed to Jordan while they were on a date in Lafayette. Needless to say, she is ecstatic and so are we. They are planning a June 2010 wedding...we have some exciting times coming up after I get well.
Well, it's a little over 24 hours until my surgery. I just wanted to give out some information about my update on the days to come.
Tomorrow I begin my colon cleansing in the afternoon...liquid diet all day and then I drink my mirolax cocktail (I know how envious you all are). Rick and I are planning on staying in Indy tomorrow night so that I will be close to the hospital since I have to be there so early for registration. My family will be with me when I register on Tuesday at 5:30am and at 7:30am I will be wheeled into surgery.
If I had any idea how things will progress, I would let you know, but depending on what they have to remove, fix and reconstruct, it will determine how long I am in surgery...some where around 6-8 hours. Day 2 will be a day of rest. and no one has mentioned how sedated or much pain I may be experiencing, and then the days following that, the ostomy team will be in to work with me and my new apperatus (filtering system, my new way of describing my upcoming outcome).
I hope that my sisters or Laurie Kinzie or Becky Lehe can update my blog to inform you all of how I am getting along. Below are the phone numbers of my sisters which they agreed that I could give out, if you want to give a call. Keep in mind that my illness has been stressful for all of my family, and I am sure the longer the day goes, they will be wearing down. Rick's family should also know how things are going.
Jane 317-403-2770
Jackie 513-305-1272
Again, I want to thank everyone that has kept me in their prayers as I have been fighting this horrible life changing disease. I know that God has me in his hands and is watching over me and my family as I approach my surgery day. He will keep me safe and let my doctors work a miracle on my body. And I will overcome all of the changes I am faced with and help Jordan plan for her upcoming wedding.
Before I get started, I have to tell you all about some exciting information that I want to share. My daughter, Jordan has been dating a young man, Aaron Nally, from Benton County (Tri-County graduate) for around 8 months. On Friday night, Aaron proposed to Jordan while they were on a date in Lafayette. Needless to say, she is ecstatic and so are we. They are planning a June 2010 wedding...we have some exciting times coming up after I get well.
Well, it's a little over 24 hours until my surgery. I just wanted to give out some information about my update on the days to come.
Tomorrow I begin my colon cleansing in the afternoon...liquid diet all day and then I drink my mirolax cocktail (I know how envious you all are). Rick and I are planning on staying in Indy tomorrow night so that I will be close to the hospital since I have to be there so early for registration. My family will be with me when I register on Tuesday at 5:30am and at 7:30am I will be wheeled into surgery.
If I had any idea how things will progress, I would let you know, but depending on what they have to remove, fix and reconstruct, it will determine how long I am in surgery...some where around 6-8 hours. Day 2 will be a day of rest. and no one has mentioned how sedated or much pain I may be experiencing, and then the days following that, the ostomy team will be in to work with me and my new apperatus (filtering system, my new way of describing my upcoming outcome).
I hope that my sisters or Laurie Kinzie or Becky Lehe can update my blog to inform you all of how I am getting along. Below are the phone numbers of my sisters which they agreed that I could give out, if you want to give a call. Keep in mind that my illness has been stressful for all of my family, and I am sure the longer the day goes, they will be wearing down. Rick's family should also know how things are going.
Jane 317-403-2770
Jackie 513-305-1272
Again, I want to thank everyone that has kept me in their prayers as I have been fighting this horrible life changing disease. I know that God has me in his hands and is watching over me and my family as I approach my surgery day. He will keep me safe and let my doctors work a miracle on my body. And I will overcome all of the changes I am faced with and help Jordan plan for her upcoming wedding.
Monday, August 24, 2009
Long awaited update about upcoming surgery
Hello everyone...
So sorry it has been so long since I have visited my blog. I will recap what has happened since late July.
On July 24, I met with my surgeon Dr. Robb. He did an exam and came up with the same conclusion as earlier...remove all function and give me a permanent colostomy bag. Again hearing that was devastating. He was 99.9% sure that there was no chance for avoiding the worst. He was very supportive in my chances that he could get all of the cancer through surgery and I was in agreement that it is cure that I want.
The following day my family, my sisters and brother, wives, husbands, kids, mom and step dad left on vacation to Norris Lake, Tn where we stayed in a huge house for the week and enjoyed the weather, water sports and time together. Needless to say, I was not my perky self...I did a lot of resting, no water sports for me and I only got wet 3 times. By the end of the week, I was carrying a fever and felt like crap. We all came home on Saturday, Aug 1, unpacked and began recooperating. On Monday, still feeling terrible and running a fever, Dr. Cardenes' office had me go to Urgent Care to get a urine test...sure enough, I had a urine infection and started medicine immediately.
On Sunday, August 2, my family and friends, teachers, administration, community members, and business affiliates had a wonderful fundraiser for me at my school, Delphi Community High School, in the front parking lot. It was amazing. It was labeled as Judi's Kick Butt Colon Cancer Fun Day...There was a dunk tank, cake walk, bake sale, basketball shooting, bouncing castle,car wash, nail painting, hair cutting, silent auction, auction, hula hoop contest, pizza eating contest, pork burger and food, and garage sale. There are probably more things that I missed, but it was awesome. I was so humbled by all of my friends, students, family, DCSC staff and administration and students, parents that came to support me and my success in fighting my cancer. I was really worried and nervous about the event, but after arriving, it was so great. I talked to a lot of people that I hadn't seen in a long time, some new people, but most everyone I knew.
It is times like this that makes you so proud to be associated with so many kind and compassionate people. I can't even begin to thank everyone that organized, helped, spent their summer days and evenings cleaning out closets, and donated things to make my benefit successful. I can't tell you how wonderful that was. I guess you never quite know how you are received by your peers, employers and the community you work in, but that day made it so clear to me. There are prayers out there for me from people all over, and I am so appreciative.
I am so proud to be from my small rural town of Brookston and so proud to be a member of such a great school corporation and supportive community of Delphi. There were donations made by companies and friends that know us through the farm, cattle, Purdue and all over. It was so so great. So any way, thanks so much to all who were involved. I can't say enough.
As for the surgery, Dr. Robb gave me a website to investigate colostomy bags and accessories...sounds so nice doesn't it. If you are interested, http://www.hollister.com/, and no it has nothing to do with the cute little clothes you can buy at the mall.
A day after the benefit I decided to go to this website and check it out. It was late at night and I only made it through about 8 of the little info videos and broke down...it was ugly, from the stoma to the bags to the information they were discussing. It was really sobering. I cried for days after and still find myself tearing up knowing what lies in my future on a daily basis. My fears were put right out there for me to be slapped in the face. So, if I can help any one get over the uncomfortable thought of getting a colonoscopy, go to this website...if you don't think it is an important procedure, this will change your mind.
My surgery is set for Tuesday, September 1. I am scared to death. Not so much for the surgery, but that I will be different physically afterwards and I am scared to look at what they have done. Everyone says that it won't matter to them that I have a colostomy and now function. Right now, I know it won't matter to them, but it matters to me. I keep thinking that for all of these years, I have tried to take care of my appearance, watch my weight, keep fit, eat right, and for all of that work and effort, this is happening. Cancer has no boundries. It attacks people who seemingly have taken care of themselves.
I have been doing a lot of soul searching trying to cope with my emotions about this physical change that awaits me. I don't know if it is helping. I am now joking a little about it...like in 1 week I am going on vacation and after Sept. 1, no one will be able to call me "Ass Hole." I am sure that will be easily change to other choice phrases.
I am having trouble sleeping due to all of the things that are running through my mind day and night. Dr. Cardenes said that she would be there for my surgery along with Dr. George who is Dr. Robb's partner. He specializes in laproscopic assisted colorectal surgery where Dr. Robb specializes in open colorectal surgery.
Next Monday, Rick and all of the kids and I will be staying at the IU Med Center Hotel. I am to register on Tuesday by 5:30 am and go into surgery at 7:30 am. I was originally told the surgery would be up to 8 hours long and I will be spending any where from 4-10 days...I have been told several different things. I am sure it will depend on my recovery and adaptability to the colostomy training.
The day after the surgery, I will rest, then the following day the ostomy team, those who train the patient on how to maintain their stoma and bag apperatus, and cleaning issues, will work with me and get me familiar with that. Hurray. The following day, they will have Rick and I doing so that we will be able to take care of things when I go home.
I have no idea how/what things to expect after surgery. You probably can use your imagination and be pretty close...drain tubes, cathaters, IVs, and others. I think I will be in intensive care following surgery, but not for sure. I or my family may be doing a blog after surgery so that you all are privy to my outcome. I am anxious for the time where surgery is over, I am at home and feeling like doing something fun...I hope that comes soon. The worst part has definitely been the waiting and the unknown.
I just want everyone to know how greatful I am for all of the prayers for me. For any of you that drove me to radiation, made food, cleaned my house, sent cards and every thing else to make my days easier, I thank you from the bottom of my heart. It has made staying strong and positive much easier. My life has changed already just by facing medical unknowns and a disease that could take my life. If I can do anything for any one, my phone is always available to give advice, support and understanding. In times like these, you find out who cares and loves you and that things could be worse. I am grateful for everything I have , my husband, children, family and friends. Thank you for being there for me and my family...until after Sept. 1st...Judi
So sorry it has been so long since I have visited my blog. I will recap what has happened since late July.
On July 24, I met with my surgeon Dr. Robb. He did an exam and came up with the same conclusion as earlier...remove all function and give me a permanent colostomy bag. Again hearing that was devastating. He was 99.9% sure that there was no chance for avoiding the worst. He was very supportive in my chances that he could get all of the cancer through surgery and I was in agreement that it is cure that I want.
The following day my family, my sisters and brother, wives, husbands, kids, mom and step dad left on vacation to Norris Lake, Tn where we stayed in a huge house for the week and enjoyed the weather, water sports and time together. Needless to say, I was not my perky self...I did a lot of resting, no water sports for me and I only got wet 3 times. By the end of the week, I was carrying a fever and felt like crap. We all came home on Saturday, Aug 1, unpacked and began recooperating. On Monday, still feeling terrible and running a fever, Dr. Cardenes' office had me go to Urgent Care to get a urine test...sure enough, I had a urine infection and started medicine immediately.
On Sunday, August 2, my family and friends, teachers, administration, community members, and business affiliates had a wonderful fundraiser for me at my school, Delphi Community High School, in the front parking lot. It was amazing. It was labeled as Judi's Kick Butt Colon Cancer Fun Day...There was a dunk tank, cake walk, bake sale, basketball shooting, bouncing castle,car wash, nail painting, hair cutting, silent auction, auction, hula hoop contest, pizza eating contest, pork burger and food, and garage sale. There are probably more things that I missed, but it was awesome. I was so humbled by all of my friends, students, family, DCSC staff and administration and students, parents that came to support me and my success in fighting my cancer. I was really worried and nervous about the event, but after arriving, it was so great. I talked to a lot of people that I hadn't seen in a long time, some new people, but most everyone I knew.
It is times like this that makes you so proud to be associated with so many kind and compassionate people. I can't even begin to thank everyone that organized, helped, spent their summer days and evenings cleaning out closets, and donated things to make my benefit successful. I can't tell you how wonderful that was. I guess you never quite know how you are received by your peers, employers and the community you work in, but that day made it so clear to me. There are prayers out there for me from people all over, and I am so appreciative.
I am so proud to be from my small rural town of Brookston and so proud to be a member of such a great school corporation and supportive community of Delphi. There were donations made by companies and friends that know us through the farm, cattle, Purdue and all over. It was so so great. So any way, thanks so much to all who were involved. I can't say enough.
As for the surgery, Dr. Robb gave me a website to investigate colostomy bags and accessories...sounds so nice doesn't it. If you are interested, http://www.hollister.com/, and no it has nothing to do with the cute little clothes you can buy at the mall.
A day after the benefit I decided to go to this website and check it out. It was late at night and I only made it through about 8 of the little info videos and broke down...it was ugly, from the stoma to the bags to the information they were discussing. It was really sobering. I cried for days after and still find myself tearing up knowing what lies in my future on a daily basis. My fears were put right out there for me to be slapped in the face. So, if I can help any one get over the uncomfortable thought of getting a colonoscopy, go to this website...if you don't think it is an important procedure, this will change your mind.
My surgery is set for Tuesday, September 1. I am scared to death. Not so much for the surgery, but that I will be different physically afterwards and I am scared to look at what they have done. Everyone says that it won't matter to them that I have a colostomy and now function. Right now, I know it won't matter to them, but it matters to me. I keep thinking that for all of these years, I have tried to take care of my appearance, watch my weight, keep fit, eat right, and for all of that work and effort, this is happening. Cancer has no boundries. It attacks people who seemingly have taken care of themselves.
I have been doing a lot of soul searching trying to cope with my emotions about this physical change that awaits me. I don't know if it is helping. I am now joking a little about it...like in 1 week I am going on vacation and after Sept. 1, no one will be able to call me "Ass Hole." I am sure that will be easily change to other choice phrases.
I am having trouble sleeping due to all of the things that are running through my mind day and night. Dr. Cardenes said that she would be there for my surgery along with Dr. George who is Dr. Robb's partner. He specializes in laproscopic assisted colorectal surgery where Dr. Robb specializes in open colorectal surgery.
Next Monday, Rick and all of the kids and I will be staying at the IU Med Center Hotel. I am to register on Tuesday by 5:30 am and go into surgery at 7:30 am. I was originally told the surgery would be up to 8 hours long and I will be spending any where from 4-10 days...I have been told several different things. I am sure it will depend on my recovery and adaptability to the colostomy training.
The day after the surgery, I will rest, then the following day the ostomy team, those who train the patient on how to maintain their stoma and bag apperatus, and cleaning issues, will work with me and get me familiar with that. Hurray. The following day, they will have Rick and I doing so that we will be able to take care of things when I go home.
I have no idea how/what things to expect after surgery. You probably can use your imagination and be pretty close...drain tubes, cathaters, IVs, and others. I think I will be in intensive care following surgery, but not for sure. I or my family may be doing a blog after surgery so that you all are privy to my outcome. I am anxious for the time where surgery is over, I am at home and feeling like doing something fun...I hope that comes soon. The worst part has definitely been the waiting and the unknown.
I just want everyone to know how greatful I am for all of the prayers for me. For any of you that drove me to radiation, made food, cleaned my house, sent cards and every thing else to make my days easier, I thank you from the bottom of my heart. It has made staying strong and positive much easier. My life has changed already just by facing medical unknowns and a disease that could take my life. If I can do anything for any one, my phone is always available to give advice, support and understanding. In times like these, you find out who cares and loves you and that things could be worse. I am grateful for everything I have , my husband, children, family and friends. Thank you for being there for me and my family...until after Sept. 1st...Judi
Sunday, July 12, 2009
My last Radiation treatment
Hi everyone. It is Sunday evening and I am going for my last radiation treatment tomorrow. Last week was busy. Monday was a normal treatment day. I went in and had the radiation and they hooked me up to my chemo bag for the week. On Tuesday, Rick, my mom, and I went to treatment and the radiation techs adjusted my radiation calling it coning down...this is where they give me the same amount of radiation but they are targeting a more precise area for the last five treatments. Then we met with the oncology doctor, Dr. Helft, to discuss my treatment plan for the future and how it has progressed thus far. He was very honest about the probability that I would have to have the total removal of any function of the rectum. Once again, I knew that was what was going to be the prognosis, but I guess I was hoping they would say, "Hey Judi, we were wrong, you're fine and there is not bad outcome for you..." Wow, that was not the case. I had another pitty party for myself that night.
On Wednesday, I met with Dr. Cardenes and broke down during my exam time. She discussed the colostomy scenario, offered names of patients that had experienced them and told me that it would by no means limit my activity or change my quality of life...there you have it, LIFE. It all comes down to that. I assured her that I would not jeopardize my life for any reason. I think that the feeling of not knowing exactly what to expect has caught me off guard. Knowledge is power and I need to know more about this so that I can work it through my brain.
After some tears and positive conversation with Dr. Card, she informed me that when I started my radiation treatments 6 weeks ago, my tumor marker (the way they rate or stage how the cancer level is in your body) was 22 which she said was fairly high. After my 25th treatment, it had dropped to 2.5 which she said was in the range where most people are...we all must have some level if I understood her right. The cancer has responded great to the radiation and chemo combo.
So, at my last treatment on Friday, they removed my chemo pack and I turned my little machine back to the home health care nurse and officially finished that part of my treatment. Tomorrow will only be the radiation.
I am feeling great. The butt is sore and will continue to react to the radiation several days even weeks after I finish the treatment. I guess the body doesn't recognize that the treatment is done because it stays in my system longer so it may get worse before it gets better. I haven't lost any weight thanks to all of my family and friends for feeding me great lunches after my treatment and for bringing food to the house.
What to expect in the next weeks...In 2 weeks, I meet with Dr. Robb for an exam. He will check the tumor to have a better idea of what will happen in surgery. I will meet with Dr. Card in a month and she will also check me for I am not sure, let's just say the healing process. Surgery will be scheduled probably closer to 7/8 weeks, so when Rick is ready to go to the fields to harvest the crops, I will be having surgery...go figure. And Jake will be in the thick of football season, Jeff will be back at school and Jordan will be busy with work (and possibly classes to get her teaching license).
The recovery from surgery will be long. They will cut me from my pelvic bone up to my belly button and then open me up on the back side also. Dr. Helft said the front will heal well, it will be the back part that will be difficult...location, location, location (plus it's dark and you know...) He said that he would wait probably 6-8 weeks before starting chemo. So somewhere around December I will start 4 months of chemo by going every two weeks to get my treatment. He said that I shouldn't lose my hair...5% lose it, 15% thin and the other 80% don't even notice. I will probably fall in the 5-15%...
Ok, so after Monday, you probably won't hear much from me. We are going on our annual boating trip with my family...sisters, brother, mom, stepdad, brother-in-laws, sister-in-law, neices, nephew, and maybe others. We will be in Tennesses enjoying some normalcy. I hope. Rick, me and all of the kids need some time away. It has been a really rough spring and summer.
I will let you know when I hear/find out any new details about my treatment plan. Once again, I can't thank you all enough for the prayers, food, donations, time driving, lunches, and all the sweet support that I have received. I can't begin to tell you how much it means to me and the rest of my family. You've all been so helpful and supportive. I hope that if any of you ever need anything from me, please ask. Until later, Judi
On Wednesday, I met with Dr. Cardenes and broke down during my exam time. She discussed the colostomy scenario, offered names of patients that had experienced them and told me that it would by no means limit my activity or change my quality of life...there you have it, LIFE. It all comes down to that. I assured her that I would not jeopardize my life for any reason. I think that the feeling of not knowing exactly what to expect has caught me off guard. Knowledge is power and I need to know more about this so that I can work it through my brain.
After some tears and positive conversation with Dr. Card, she informed me that when I started my radiation treatments 6 weeks ago, my tumor marker (the way they rate or stage how the cancer level is in your body) was 22 which she said was fairly high. After my 25th treatment, it had dropped to 2.5 which she said was in the range where most people are...we all must have some level if I understood her right. The cancer has responded great to the radiation and chemo combo.
So, at my last treatment on Friday, they removed my chemo pack and I turned my little machine back to the home health care nurse and officially finished that part of my treatment. Tomorrow will only be the radiation.
I am feeling great. The butt is sore and will continue to react to the radiation several days even weeks after I finish the treatment. I guess the body doesn't recognize that the treatment is done because it stays in my system longer so it may get worse before it gets better. I haven't lost any weight thanks to all of my family and friends for feeding me great lunches after my treatment and for bringing food to the house.
What to expect in the next weeks...In 2 weeks, I meet with Dr. Robb for an exam. He will check the tumor to have a better idea of what will happen in surgery. I will meet with Dr. Card in a month and she will also check me for I am not sure, let's just say the healing process. Surgery will be scheduled probably closer to 7/8 weeks, so when Rick is ready to go to the fields to harvest the crops, I will be having surgery...go figure. And Jake will be in the thick of football season, Jeff will be back at school and Jordan will be busy with work (and possibly classes to get her teaching license).
The recovery from surgery will be long. They will cut me from my pelvic bone up to my belly button and then open me up on the back side also. Dr. Helft said the front will heal well, it will be the back part that will be difficult...location, location, location (plus it's dark and you know...) He said that he would wait probably 6-8 weeks before starting chemo. So somewhere around December I will start 4 months of chemo by going every two weeks to get my treatment. He said that I shouldn't lose my hair...5% lose it, 15% thin and the other 80% don't even notice. I will probably fall in the 5-15%...
Ok, so after Monday, you probably won't hear much from me. We are going on our annual boating trip with my family...sisters, brother, mom, stepdad, brother-in-laws, sister-in-law, neices, nephew, and maybe others. We will be in Tennesses enjoying some normalcy. I hope. Rick, me and all of the kids need some time away. It has been a really rough spring and summer.
I will let you know when I hear/find out any new details about my treatment plan. Once again, I can't thank you all enough for the prayers, food, donations, time driving, lunches, and all the sweet support that I have received. I can't begin to tell you how much it means to me and the rest of my family. You've all been so helpful and supportive. I hope that if any of you ever need anything from me, please ask. Until later, Judi
Monday, July 6, 2009
My final 5 radiation treatments
Hi all, it has been quite some time since I blogged.
Here is my latest update on my therapy and condition. Last week went very well. I only had 4 days of radiation and chemo due to the 4th of July holiday on Friday. It was nice having my chemo pack off for the long weekend. I rested most of the weekend. I was able to sit out by the pool on Sunday. Of course, my butt is very tender...and will continue to hurt until radiation is over which is only 5 more treatments...I can't wait!!!
This week, is going to be the last full week. I may only go 4 days this week and then 2 days next week. I will find that out tomorrow. Rick and I are meeting with the chemo oncologist, Dr. Helft, tomorrow at 11 am. I think he is just following up on my radiation progress and hopefully he will give me a little more information on what awaits me in the up coming months. Wednesday will be my doctors appointment with Dr. Cardenes. All of the people that I see for my treatment each day are awesome. I will miss them when I don't have to go there any more.
I will let you know how my appointment goes with Dr. Helft.
Thanks again to all of our family and friends that have brought out food and driven me to my appointments. It has been so nice to not worry about fixing food for Rick and the boys. The drivers have been great also, keeping me active and distracted from everything going on. Until then, Judi
Here is my latest update on my therapy and condition. Last week went very well. I only had 4 days of radiation and chemo due to the 4th of July holiday on Friday. It was nice having my chemo pack off for the long weekend. I rested most of the weekend. I was able to sit out by the pool on Sunday. Of course, my butt is very tender...and will continue to hurt until radiation is over which is only 5 more treatments...I can't wait!!!
This week, is going to be the last full week. I may only go 4 days this week and then 2 days next week. I will find that out tomorrow. Rick and I are meeting with the chemo oncologist, Dr. Helft, tomorrow at 11 am. I think he is just following up on my radiation progress and hopefully he will give me a little more information on what awaits me in the up coming months. Wednesday will be my doctors appointment with Dr. Cardenes. All of the people that I see for my treatment each day are awesome. I will miss them when I don't have to go there any more.
I will let you know how my appointment goes with Dr. Helft.
Thanks again to all of our family and friends that have brought out food and driven me to my appointments. It has been so nice to not worry about fixing food for Rick and the boys. The drivers have been great also, keeping me active and distracted from everything going on. Until then, Judi
Saturday, June 27, 2009
Week 4 things are going great...
Good morning. Sorry it has taken me so long to get back on the blog. It has been very busy...but things have been going great with my therapy. I have just completed 4 weeks of radiation/chemo. On Wednesday, I had my weekly appointment with Dr. Cardenes. She did not do any internal checks because of the pain that is now apparent due to the radiation. My skin outside of the rectum and back side is burned and can be seen so if it is noticeable from the outside, she knows what it is like on the inside...
My hemoglobin level has dropped to 9.4 from 9.7, but she said that is ok considering the where I am in treatment. My white blood cell count is a little low, but also very typical. Neither of them are at critical levels. Dr. Card said that I am doing great. I haven't lost any weight, my appetite is good, I am keeping active, and getting enough rest in the night. Over all, I feel great.
I go back on Monday to get my new chemo bag and start the radiation. I am counting the days to be done. I do have a little nausea and diarrhea in the afternoons, usually, but it could be worse. I am taking some medicine for those symptoms.
I have an appointment with my oncologist, Dr. Helft, on July 7. I assume we will just talk about what is yet to come.
Again, I just want to thank all of your for your prayers, cards and all of the other things that my friends have done for me and my family.
I will probably only be blogging once a week since my treatments are pretty non exciting...I will talk to you all next week. Judi
My hemoglobin level has dropped to 9.4 from 9.7, but she said that is ok considering the where I am in treatment. My white blood cell count is a little low, but also very typical. Neither of them are at critical levels. Dr. Card said that I am doing great. I haven't lost any weight, my appetite is good, I am keeping active, and getting enough rest in the night. Over all, I feel great.
I go back on Monday to get my new chemo bag and start the radiation. I am counting the days to be done. I do have a little nausea and diarrhea in the afternoons, usually, but it could be worse. I am taking some medicine for those symptoms.
I have an appointment with my oncologist, Dr. Helft, on July 7. I assume we will just talk about what is yet to come.
Again, I just want to thank all of your for your prayers, cards and all of the other things that my friends have done for me and my family.
I will probably only be blogging once a week since my treatments are pretty non exciting...I will talk to you all next week. Judi
Thursday, June 18, 2009
Week 3 of radiation
Hi everyone,
Sorry it has been a week since my last posting. It was a busy weekend. Thursday and Friday's appointments went great. I was with out my chemo bag all weekend and on Monday I was hooked up again. My appointments are now at 9:30 in the morning. It seems to be working well. We leave home at 7:30 am, arrive a little before 9 and they do my radiation sometimes before 9:30. It doesn't seem so congested early in the morning.
On Wednesday, Dr. Card did a pelvic and rectal exam. The tumor is reacting exactly how they had hoped. It continues to shrink and flatten allowing passage of intestinal stuff (haha) through. The radiation has been giving me diarrhea pretty severely every late afternoon and evening. They are trying some meds to see if it won't help. Monday and Tuesday evenings I was miserable, but yesterday and today I have felt wonderful.
I was advised to take the pain medicine every 6 hours to help with the pain and discomfort from the radiation. I am taking anti nausea medicine at lunch time to help with the diarrhea, Imodium plus Metamucil balance my intestinal irritation.
Dr. Cardenes did say that the tumor is very low...I think she was able to feel where the tumor is attached or detect which way it is shrinking and I don't think it is up.
My hemoglobin count is at 9.7 after blood drawn on Friday. I don't think they will give me any transfusions as long as the count continues to go up.
Again, I would like to thank all of you that have sent sincere thoughts for a quick and complete recovery, all of the food, driving me to and from radiation, and gifts. They are so welcome and uplifting to me...I sat down last night and read through them all again. Thanks for helping keep my spirits up...until later, Judi
PS
Rick's dad, Ray passed away last Wednesday and was buried on Saturday. It was a sad week for us all and has been pretty stressful. Keep Shirley and the rest of the family in your prayers also.
Sorry it has been a week since my last posting. It was a busy weekend. Thursday and Friday's appointments went great. I was with out my chemo bag all weekend and on Monday I was hooked up again. My appointments are now at 9:30 in the morning. It seems to be working well. We leave home at 7:30 am, arrive a little before 9 and they do my radiation sometimes before 9:30. It doesn't seem so congested early in the morning.
On Wednesday, Dr. Card did a pelvic and rectal exam. The tumor is reacting exactly how they had hoped. It continues to shrink and flatten allowing passage of intestinal stuff (haha) through. The radiation has been giving me diarrhea pretty severely every late afternoon and evening. They are trying some meds to see if it won't help. Monday and Tuesday evenings I was miserable, but yesterday and today I have felt wonderful.
I was advised to take the pain medicine every 6 hours to help with the pain and discomfort from the radiation. I am taking anti nausea medicine at lunch time to help with the diarrhea, Imodium plus Metamucil balance my intestinal irritation.
Dr. Cardenes did say that the tumor is very low...I think she was able to feel where the tumor is attached or detect which way it is shrinking and I don't think it is up.
My hemoglobin count is at 9.7 after blood drawn on Friday. I don't think they will give me any transfusions as long as the count continues to go up.
Again, I would like to thank all of you that have sent sincere thoughts for a quick and complete recovery, all of the food, driving me to and from radiation, and gifts. They are so welcome and uplifting to me...I sat down last night and read through them all again. Thanks for helping keep my spirits up...until later, Judi
PS
Rick's dad, Ray passed away last Wednesday and was buried on Saturday. It was a sad week for us all and has been pretty stressful. Keep Shirley and the rest of the family in your prayers also.
Wednesday, June 10, 2009
Week 2 Chemo/radiation, inserting new port needle
Hi everyone.
Sorry I haven't blogged since the weekend. Again, I had a great weekend, with the chemo needle out, I felt free to move around plus I had quite a bit of energy from the blood and iron that I took earlier last week.
Monday was a long appointment, with the new software updates over the weekend in the radiation department, I had to wait quite a while to get my radiation treatment. After that, they took some blood to check my hemoglobin levels which also shows my white and red blood count levels. The hemoglobin level raised from 8.3 up to 9.4. It is better, they would still like it a little higher but will keep monitoring each beginning of the week to see if it goes down. If it goes down, they will probably give me more blood and iron.
Giving blood is pretty easy...they know their business around there. After giving blood, I met with the nurse from Clarian Home Health Care to insert the port needle and get my chemo going again. Well, the nurse pushed the needle in the bulge (stopper) of the port and didn't get any fluid out, which indicated that she had not hit the artery. She had me cough, raise my hands over my head, cough some more but still didn't move the needle into the line of the artery. She thought that the needle slipped to the side of the stopper area so she had to take the needle out and put in a new one. The pain wasn't bad, on the second one, the pressure was pretty intense but she hit it like a bulls eye. Immediately she was able to get fluid through the tubing and started the chemo pack up.
My treatment went really smooth on Tuesday, I was in and out in about 20 minutes. Pretty uneventful. I had friends, Laurie and Neal take me to Indy and we did lunch afterwards and got ice cream on our way through Lafayette. It was a lot of fun. They were able to catch me up on school gossip, boy how I have missed that...
Today, Kim VanMeter drove me to Indy, and my sister Jane met us there because I actually had an appointment with Dr. Cardenes after radiation. Radiation went well and so did my appointment with Dr. Card. She gave me a pelvic exam and found that the tumor has shrunk and is beginning to flatten out. She was very excited that there was that difference in only 8 radiation treatments. She also said that it was not as prevalent when felt through the vaginal wall like it had during the first exam.
I am experiencing some diarrhea and some pressure across my buttocks which will probably continue to increase. Even though the tumor is shrinking, the tissue around the tumor is inflamed and irritated by the radiation. The radiation will last 6 weeks along with the chemo.
Rick and I had a discussion about the results of the PET scan and the lymph node biopsy. Clarifying for me, I asked if cancer was found in the lymph nodes outside of the rectum. From the PET scan, it was not detected, but with the ultra sound, it is so much more sensitive to minuscule cells. They did find one node with cancer. It was less than 3mm. Dr. Card explained that the will not change my stage from 3A, treat me like cancer was apparent outside the rectum but really are not worried about that small cancer cell...remember the staging is only used to determine the likelihood of re occurrence. So, I am not worrying because she said it shouldn't affect the chance of cure.
PS...with all of this, Rick's dad, Ray, passed away early this morning after being in and out of the hospital and nursing home in the last 1-2 months. He had been continuing to get worse as last week came to an end. Keep Rick, his mom, Shirley, and all of his brothers and sister in your prayers also.
I also want to thank all who have sent cards full of well wishes and all other generous deeds. I truly appreciate them all. I'll keep you all informed. Judi
Sorry I haven't blogged since the weekend. Again, I had a great weekend, with the chemo needle out, I felt free to move around plus I had quite a bit of energy from the blood and iron that I took earlier last week.
Monday was a long appointment, with the new software updates over the weekend in the radiation department, I had to wait quite a while to get my radiation treatment. After that, they took some blood to check my hemoglobin levels which also shows my white and red blood count levels. The hemoglobin level raised from 8.3 up to 9.4. It is better, they would still like it a little higher but will keep monitoring each beginning of the week to see if it goes down. If it goes down, they will probably give me more blood and iron.
Giving blood is pretty easy...they know their business around there. After giving blood, I met with the nurse from Clarian Home Health Care to insert the port needle and get my chemo going again. Well, the nurse pushed the needle in the bulge (stopper) of the port and didn't get any fluid out, which indicated that she had not hit the artery. She had me cough, raise my hands over my head, cough some more but still didn't move the needle into the line of the artery. She thought that the needle slipped to the side of the stopper area so she had to take the needle out and put in a new one. The pain wasn't bad, on the second one, the pressure was pretty intense but she hit it like a bulls eye. Immediately she was able to get fluid through the tubing and started the chemo pack up.
My treatment went really smooth on Tuesday, I was in and out in about 20 minutes. Pretty uneventful. I had friends, Laurie and Neal take me to Indy and we did lunch afterwards and got ice cream on our way through Lafayette. It was a lot of fun. They were able to catch me up on school gossip, boy how I have missed that...
Today, Kim VanMeter drove me to Indy, and my sister Jane met us there because I actually had an appointment with Dr. Cardenes after radiation. Radiation went well and so did my appointment with Dr. Card. She gave me a pelvic exam and found that the tumor has shrunk and is beginning to flatten out. She was very excited that there was that difference in only 8 radiation treatments. She also said that it was not as prevalent when felt through the vaginal wall like it had during the first exam.
I am experiencing some diarrhea and some pressure across my buttocks which will probably continue to increase. Even though the tumor is shrinking, the tissue around the tumor is inflamed and irritated by the radiation. The radiation will last 6 weeks along with the chemo.
Rick and I had a discussion about the results of the PET scan and the lymph node biopsy. Clarifying for me, I asked if cancer was found in the lymph nodes outside of the rectum. From the PET scan, it was not detected, but with the ultra sound, it is so much more sensitive to minuscule cells. They did find one node with cancer. It was less than 3mm. Dr. Card explained that the will not change my stage from 3A, treat me like cancer was apparent outside the rectum but really are not worried about that small cancer cell...remember the staging is only used to determine the likelihood of re occurrence. So, I am not worrying because she said it shouldn't affect the chance of cure.
PS...with all of this, Rick's dad, Ray, passed away early this morning after being in and out of the hospital and nursing home in the last 1-2 months. He had been continuing to get worse as last week came to an end. Keep Rick, his mom, Shirley, and all of his brothers and sister in your prayers also.
I also want to thank all who have sent cards full of well wishes and all other generous deeds. I truly appreciate them all. I'll keep you all informed. Judi
Sunday, June 7, 2009
Update from Friday, Saturday, & Sunday
Good evening,
Sorry it took me all weekend to let you know how the end of the week went for me. Actually, Friday was long, but it was an easy day just sitting in that recliner getting infused with 1000ml of iron. This took place after my radiation. I arrived in the infusion room about 10:30 and they had to put a line into my hand because my port was being used for the chemo. They first gave me about 100ml of iron as a trial bag which took about 30 minutes, then they had to wait 30 minutes to see if i was allergic to it, then they gave me 2 small bags of allergy medicine, benedryl and epenphren? and wait for about 20 minutes to see if I reacted to them, then they started 5 hours of the iron infusion. I walked out of the infusion room, being the last one, at 6:10pm.
This is not the same place that I had gotten my two bags of blood. I found out what the difference is about a transfusion as aposed to an infusion. A transfusion (blood) is to put something back into the body that the body can produce on its own, but is low on...an infusion is something they are putting in the body that the body needs but can not produce it on its own...
The body needs iron to make new hemoglobin which comes in from foods and vitamins and without iron, the body can not make hemoglobin with out it.So my body could make hemoglobin, just not fast enough to make me feel better, so they were helping boost that problem.
Any way, I felt great Friday night, spent the night at my sister Jane's house in Noblesville and she then took me into the hospital on Saturday for my 5th radiation treatment followed by the nurse removing my chemo pump...tubes, needles, and pouch. I felt so free. All of the bandages were off and my incisions looked great, the pump looked great and it was painless.
Sunday I got to take a normal shower, it was great. Tomorrow, Monday, I plan on going in to school and do a little work before my appointment at 1:15.
My appointment will consist of some blood work, radiation, and insert another infusion of chemo that will last 96 hours. I will have radiation every day all week and the chemo bag will come off on Friday...sounds like a pretty easy week.
So many people have offered to take me to Indy and I have some people driving me to Indy this week. I think we are fine for right now on drivers this week. Now next week may be different.
We have also had so many people offering to bring out food. Right now, we have enough to make it through this week. We are so grateful for all of the generosity of everyone. Please know that we appreciate it all. I will keep you posted as I start my 2nd week of chemo/radiation...Judi
Sorry it took me all weekend to let you know how the end of the week went for me. Actually, Friday was long, but it was an easy day just sitting in that recliner getting infused with 1000ml of iron. This took place after my radiation. I arrived in the infusion room about 10:30 and they had to put a line into my hand because my port was being used for the chemo. They first gave me about 100ml of iron as a trial bag which took about 30 minutes, then they had to wait 30 minutes to see if i was allergic to it, then they gave me 2 small bags of allergy medicine, benedryl and epenphren? and wait for about 20 minutes to see if I reacted to them, then they started 5 hours of the iron infusion. I walked out of the infusion room, being the last one, at 6:10pm.
This is not the same place that I had gotten my two bags of blood. I found out what the difference is about a transfusion as aposed to an infusion. A transfusion (blood) is to put something back into the body that the body can produce on its own, but is low on...an infusion is something they are putting in the body that the body needs but can not produce it on its own...
The body needs iron to make new hemoglobin which comes in from foods and vitamins and without iron, the body can not make hemoglobin with out it.So my body could make hemoglobin, just not fast enough to make me feel better, so they were helping boost that problem.
Any way, I felt great Friday night, spent the night at my sister Jane's house in Noblesville and she then took me into the hospital on Saturday for my 5th radiation treatment followed by the nurse removing my chemo pump...tubes, needles, and pouch. I felt so free. All of the bandages were off and my incisions looked great, the pump looked great and it was painless.
Sunday I got to take a normal shower, it was great. Tomorrow, Monday, I plan on going in to school and do a little work before my appointment at 1:15.
My appointment will consist of some blood work, radiation, and insert another infusion of chemo that will last 96 hours. I will have radiation every day all week and the chemo bag will come off on Friday...sounds like a pretty easy week.
So many people have offered to take me to Indy and I have some people driving me to Indy this week. I think we are fine for right now on drivers this week. Now next week may be different.
We have also had so many people offering to bring out food. Right now, we have enough to make it through this week. We are so grateful for all of the generosity of everyone. Please know that we appreciate it all. I will keep you posted as I start my 2nd week of chemo/radiation...Judi
Thursday, June 4, 2009
Radiation treatment
Hi everyone, wears heading to IU med for a radiation treatment. It is supposed to a couple of hours today, not exactly sure, I think they are getting me equipment or software... We all know what that means, I'll be there a lot longer or maybe I will have supernatural powers Afterwards.
Yesterday was long, Jackie, Jake, and I shopped for some household stuff before treatment, I was tired the rest of the day. I think the radiation makes me have flu like symptoms, so last night I was a little on edge about the possibility of getting the flu on top of every thing else and it kind of scared me. My glue was also ready to come off my incision for putting in the port (which is a very delicate vein) so you know there was the worry of it popping off and me bleeding to death...I'm a tax over dramatic. Any way, I took a sleeping aid and didn't wake all night.
Friday my radiation starts at 10am and I get the iron infusion at 10:30. That will take 6 hours. Another long day. We have discussed me just staying at Jane's since treatment on Saturday will likely be early, also.
Right now I think my treatments will be close to 2 in the afternoon and as
Morning slots open, my schedule may change. Keep praying for my family, rick not only is dealing with me and my illness, but his dad's health continues to diminish and everyone is worried about him.
Thanks for all the food and offer, we will keep you all updated. J
Yesterday was long, Jackie, Jake, and I shopped for some household stuff before treatment, I was tired the rest of the day. I think the radiation makes me have flu like symptoms, so last night I was a little on edge about the possibility of getting the flu on top of every thing else and it kind of scared me. My glue was also ready to come off my incision for putting in the port (which is a very delicate vein) so you know there was the worry of it popping off and me bleeding to death...I'm a tax over dramatic. Any way, I took a sleeping aid and didn't wake all night.
Friday my radiation starts at 10am and I get the iron infusion at 10:30. That will take 6 hours. Another long day. We have discussed me just staying at Jane's since treatment on Saturday will likely be early, also.
Right now I think my treatments will be close to 2 in the afternoon and as
Morning slots open, my schedule may change. Keep praying for my family, rick not only is dealing with me and my illness, but his dad's health continues to diminish and everyone is worried about him.
Thanks for all the food and offer, we will keep you all updated. J
Wednesday, June 3, 2009
Hi all,
Well, I was really pumped after leaving the hospital yesterday, ate dinner, and then I was wiped out. Jordan blogged and gave you the most important information that we got yesterday. My chemo oncologist hunted me down in the radiation dept. to give us the news about the PET scan. I don't think I realized how those results were wearing on my family until I saw their expressions when we were told that no cancer showed up anywhere outside the rectum...what a relief, and a lot of tears. My radiation oncologist, Dr. Card was really upbeat also, but adament about shrinking the tumor...
We had a busy Monday and Tuesday. Monday we got to Methodist at 8am to get the chemo port put in. They didn't put me all the way under so I felt a lot of pushing...I am beeping, low battery on my pump...no fear, they trained us all on it yesterday. They must be cheap ass batteries...they were supposed to last 2 days, liars. Ok, I am back on track. So it was only supposed to take a short amount of time to get the port in and then I could have lunch and go on to my next appointment, the PET scan at 2:30. Of course that didn't pan out, they didn't even get me into surgery until 11am, then with the proceure and recovery, I barely made it to the PET scan on time, which was at IU. My family fasted with me, probably out of guilt...The PET scan didn't take too long, maybe 30 minutes. We left Indy after 5pm and I was whipped.
Tuesday I could eat and I didn't have to worry about fasting. We started at 10am in the IU med center, Infusion dept. for two bags of blood, the transfusion. It took about 5 hours. I got to eat and drink, watch TV, listen to my I pod, and read...I even napped. It was very comfortable. We left there, had a quick lunch and went to radiation oncology in the Cancer Pavilion right there in the basement. A Clarian Home Health care provider cleaned my port area, and prepped it for the chemo pump. She gave us instructions, how to work it, and did a lot of trouble shooting about the monitor...so far I have only tried to strangle myself once, in the middle of the night. It weighs about 4 lbs...not the prettiest fanny pack but there is room for lipstick and credit cards.
So by 3:30, my chemo was a drippin and we went into radiation...nothing to it. I just layed there. No zaps, sparks, neon lights, it was absolutely painless. I was really feeling pretty good when we left...everyone of my family members said that I had more color to my skin after the blood transfusion and the nurse thought I would feel the effects within 2 days. I still need an iron infusion. I think they are planning it on Friday morning, it will take 6 hours so they will do it after radiation.
The rest of the week my schedule is...today, Wednesday, radiation at 2 pm, Thursday radiation at 1 pm, Friday radiation early morning followed by the iron infusion, Saturday radiation early morning and the chemo pack comes off and they will do blood work to prep me for Mondays chemo order.
Then next week, my appointments should all be 2pm, we will start on Monday hooking up a new chemo pump followed by radiation, radiation on Tuesday, Wednesday, Thursday and Friday. A doctors appointment on every Wednesday with Dr. Cardenes, and then the pump comes off on Friday with blood work to prep for the following week...sounds pretty simple, yah.
Well, thanks for letting me ramble. You can't know how much I and all of my family appreciate all of the prayers and well wishes. I will keep you posted. Judi
Well, I was really pumped after leaving the hospital yesterday, ate dinner, and then I was wiped out. Jordan blogged and gave you the most important information that we got yesterday. My chemo oncologist hunted me down in the radiation dept. to give us the news about the PET scan. I don't think I realized how those results were wearing on my family until I saw their expressions when we were told that no cancer showed up anywhere outside the rectum...what a relief, and a lot of tears. My radiation oncologist, Dr. Card was really upbeat also, but adament about shrinking the tumor...
We had a busy Monday and Tuesday. Monday we got to Methodist at 8am to get the chemo port put in. They didn't put me all the way under so I felt a lot of pushing...I am beeping, low battery on my pump...no fear, they trained us all on it yesterday. They must be cheap ass batteries...they were supposed to last 2 days, liars. Ok, I am back on track. So it was only supposed to take a short amount of time to get the port in and then I could have lunch and go on to my next appointment, the PET scan at 2:30. Of course that didn't pan out, they didn't even get me into surgery until 11am, then with the proceure and recovery, I barely made it to the PET scan on time, which was at IU. My family fasted with me, probably out of guilt...The PET scan didn't take too long, maybe 30 minutes. We left Indy after 5pm and I was whipped.
Tuesday I could eat and I didn't have to worry about fasting. We started at 10am in the IU med center, Infusion dept. for two bags of blood, the transfusion. It took about 5 hours. I got to eat and drink, watch TV, listen to my I pod, and read...I even napped. It was very comfortable. We left there, had a quick lunch and went to radiation oncology in the Cancer Pavilion right there in the basement. A Clarian Home Health care provider cleaned my port area, and prepped it for the chemo pump. She gave us instructions, how to work it, and did a lot of trouble shooting about the monitor...so far I have only tried to strangle myself once, in the middle of the night. It weighs about 4 lbs...not the prettiest fanny pack but there is room for lipstick and credit cards.
So by 3:30, my chemo was a drippin and we went into radiation...nothing to it. I just layed there. No zaps, sparks, neon lights, it was absolutely painless. I was really feeling pretty good when we left...everyone of my family members said that I had more color to my skin after the blood transfusion and the nurse thought I would feel the effects within 2 days. I still need an iron infusion. I think they are planning it on Friday morning, it will take 6 hours so they will do it after radiation.
The rest of the week my schedule is...today, Wednesday, radiation at 2 pm, Thursday radiation at 1 pm, Friday radiation early morning followed by the iron infusion, Saturday radiation early morning and the chemo pack comes off and they will do blood work to prep me for Mondays chemo order.
Then next week, my appointments should all be 2pm, we will start on Monday hooking up a new chemo pump followed by radiation, radiation on Tuesday, Wednesday, Thursday and Friday. A doctors appointment on every Wednesday with Dr. Cardenes, and then the pump comes off on Friday with blood work to prep for the following week...sounds pretty simple, yah.
Well, thanks for letting me ramble. You can't know how much I and all of my family appreciate all of the prayers and well wishes. I will keep you posted. Judi
Tuesday, June 2, 2009
Hi everyone this is Jordan. Mom is tired so I am blogging for her. I am going to make this brief becuase I have typed it 3 times and it continues to delete it.
The good news and most important information is that the PET scan and biopsy of the lymph nodes both came back negative for cancer. So they have not detected cancer anywhere else in the body other than the rectum. The lymph nodes around the rectum came back negative for cancer but they will still treat these as if they are or could be cancerous. So this news was really good and mom was really upbeat and positive.
Mom will blog in the morning and be more detailed!
Thanks for all of your thoughts and prayers they are really helping. This was proved with our positive results today. We are so lucky to such a supportive group of friends and family. Thank you for all you guys are doing!
The good news and most important information is that the PET scan and biopsy of the lymph nodes both came back negative for cancer. So they have not detected cancer anywhere else in the body other than the rectum. The lymph nodes around the rectum came back negative for cancer but they will still treat these as if they are or could be cancerous. So this news was really good and mom was really upbeat and positive.
Mom will blog in the morning and be more detailed!
Thanks for all of your thoughts and prayers they are really helping. This was proved with our positive results today. We are so lucky to such a supportive group of friends and family. Thank you for all you guys are doing!
Sunday, May 31, 2009
Good morning, sorry I didn't get back to you on Friday. It was a hard day. I had a pitty party for myself when we got home from the hospital and ended up sleeping from 6pm until the next morning.
Ok, here it is...
My team of doctor's are Dr. Cardenes(radiation), Dr. Helft(Chemotherapy), and Dr. Robb(Surgeon). Dr. Helft is the doctor I will continue to see even after my final treatments of chemo are done.
We met with the chemo oncologist, Dr. Helft. He was great. He explained everything about the chemo/radiation, surgery, and then the follow up of just chemo. He explained that the radiation works much better with a little bit of chemo. On Monday morning, we go to IU med center and they will put me under to insert the chemo port (somewhere in my shoulder). After that I will have a PET scan in the afternoon. I will return on Tuesday to get my chemo pump that will automatically drip through the port until Friday. I will also get my first radiation treatment. The radiation doses are low so that they kill bad tissue but lessen the amount of good tissue damage. The radiation will continue everyday of the week, Monday-Friday, Friday being the day that the chemo pump comes off. So for 6-8 weeks, I will arrive on Monday at IU, get a new chemo pump, have radiation through Friday and have the pump removed on Friday (not the port, it stays).
I think I mentioned that my hemoglobin level was quite low. On Tuesday after radiation and starting the chemo pump, I will my day with a blood transfusion and an iron infusion...that will take approximately 5 hours. It will be an extremely long day. I hope I can sit that long.
The statistics that Dr. Helft gave us was that with chemo/radiation, surgery, chemo treatment, the recurrence of local cancer (anywhere in the rectal/pelvic area) is 5-10%. For recurrence of cancer in a distant location (another organ, most likely the liver or lungs) is closer to 30%. If I all I did was surgery then the chances of recurrance locally is about 30% and distantly is about 40-45%. The worst news he had to say was that if the cancer came back in a distant location, it is not cureable, only treatable.
If the cancer doesn't come back in the first 3 years, it is 75% likely not to return. If it goes 5 years with out recurrence, the percentage moves to like 98% not to return at all.
The type of cancer that I have is typical of this area so they know how the best way to treat it.
After all of this information from Dr. Helft, we met the surgeon, Dr. Robb. After examining me, he told us all that there was no way to save any of the function of my rectal area. It is all about LOCATION...After the 6-8 weeks of chemo/radiation, I will have about 6-8 weeks of rest before surgery. Surgery could last anywhere from 3-8 hours depending on what the do when they get in there. If the ovaries or uterus need to come out, he will do that. Dr. Robb will have multiple doctors in surgery with him. He will have a plastic surgeon ready if there is reconstruction needed, however he usually does all of the reconstruction himself unless it gets to complex.
He told us that this is a very delicate area for women...there is the bladder, the urethra, vagina, lots of blood vessels and nerves that could potentially be damaged (that if they aren't already damaged by the radiation, yippy). Recovery from this surger is anywhere from 6 weeks to 3 months.
After surgery, they will wait before starting the last procedure of chemo, I think it is high dosages...assuming that there are cancer cells hiding somewhere else in my body. They will administer one dose every 2 weeks for approximately 3-4 months.
So in a nut shell, I start chemo/radiation this week, I will be tired but I shouldn't loose my hair, probably can't spend a lot of time in the sun, but I will be able to resume normal activities as I feel like it.
In approximately 14 weeks from now, surgery will result in a colostomy with no chance to reconnect function, there may be other things they take out as needed. Recovery will probably be long (BUT I will be at every one of Jake's football games, probably standing).
One other thing that Dr. Helft suggested other than low impact excersize is to eat a Mediterranean diet. This consists of fish and poultry, fresh fruits and veggies, and whole grains. If anyone has good receipes let me know!
So I am thinking sometime around late fall, I will start the chemo.
Even though the CT scan did not show any evidence of cancer anywhere else, they are treating like there could be. All of the oncologists said that without a great surgeon to remove all of the cancer cells, they can only treat me so it is all about CURE. I loved my doctors, I pray we are in the right place. I trust them to be aggressive and get all of the cancer out and I will deal with what I need to afterwards...I want to thank all of you for your support, prayers, and kind words. Lord knows I way to ornery to let this take me down. By far, Friday was the hardest day, but after my pitty party and good nights sleep, things aren't stopping me from fighting.
Ok, here it is...
My team of doctor's are Dr. Cardenes(radiation), Dr. Helft(Chemotherapy), and Dr. Robb(Surgeon). Dr. Helft is the doctor I will continue to see even after my final treatments of chemo are done.
We met with the chemo oncologist, Dr. Helft. He was great. He explained everything about the chemo/radiation, surgery, and then the follow up of just chemo. He explained that the radiation works much better with a little bit of chemo. On Monday morning, we go to IU med center and they will put me under to insert the chemo port (somewhere in my shoulder). After that I will have a PET scan in the afternoon. I will return on Tuesday to get my chemo pump that will automatically drip through the port until Friday. I will also get my first radiation treatment. The radiation doses are low so that they kill bad tissue but lessen the amount of good tissue damage. The radiation will continue everyday of the week, Monday-Friday, Friday being the day that the chemo pump comes off. So for 6-8 weeks, I will arrive on Monday at IU, get a new chemo pump, have radiation through Friday and have the pump removed on Friday (not the port, it stays).
I think I mentioned that my hemoglobin level was quite low. On Tuesday after radiation and starting the chemo pump, I will my day with a blood transfusion and an iron infusion...that will take approximately 5 hours. It will be an extremely long day. I hope I can sit that long.
The statistics that Dr. Helft gave us was that with chemo/radiation, surgery, chemo treatment, the recurrence of local cancer (anywhere in the rectal/pelvic area) is 5-10%. For recurrence of cancer in a distant location (another organ, most likely the liver or lungs) is closer to 30%. If I all I did was surgery then the chances of recurrance locally is about 30% and distantly is about 40-45%. The worst news he had to say was that if the cancer came back in a distant location, it is not cureable, only treatable.
If the cancer doesn't come back in the first 3 years, it is 75% likely not to return. If it goes 5 years with out recurrence, the percentage moves to like 98% not to return at all.
The type of cancer that I have is typical of this area so they know how the best way to treat it.
After all of this information from Dr. Helft, we met the surgeon, Dr. Robb. After examining me, he told us all that there was no way to save any of the function of my rectal area. It is all about LOCATION...After the 6-8 weeks of chemo/radiation, I will have about 6-8 weeks of rest before surgery. Surgery could last anywhere from 3-8 hours depending on what the do when they get in there. If the ovaries or uterus need to come out, he will do that. Dr. Robb will have multiple doctors in surgery with him. He will have a plastic surgeon ready if there is reconstruction needed, however he usually does all of the reconstruction himself unless it gets to complex.
He told us that this is a very delicate area for women...there is the bladder, the urethra, vagina, lots of blood vessels and nerves that could potentially be damaged (that if they aren't already damaged by the radiation, yippy). Recovery from this surger is anywhere from 6 weeks to 3 months.
After surgery, they will wait before starting the last procedure of chemo, I think it is high dosages...assuming that there are cancer cells hiding somewhere else in my body. They will administer one dose every 2 weeks for approximately 3-4 months.
So in a nut shell, I start chemo/radiation this week, I will be tired but I shouldn't loose my hair, probably can't spend a lot of time in the sun, but I will be able to resume normal activities as I feel like it.
In approximately 14 weeks from now, surgery will result in a colostomy with no chance to reconnect function, there may be other things they take out as needed. Recovery will probably be long (BUT I will be at every one of Jake's football games, probably standing).
One other thing that Dr. Helft suggested other than low impact excersize is to eat a Mediterranean diet. This consists of fish and poultry, fresh fruits and veggies, and whole grains. If anyone has good receipes let me know!
So I am thinking sometime around late fall, I will start the chemo.
Even though the CT scan did not show any evidence of cancer anywhere else, they are treating like there could be. All of the oncologists said that without a great surgeon to remove all of the cancer cells, they can only treat me so it is all about CURE. I loved my doctors, I pray we are in the right place. I trust them to be aggressive and get all of the cancer out and I will deal with what I need to afterwards...I want to thank all of you for your support, prayers, and kind words. Lord knows I way to ornery to let this take me down. By far, Friday was the hardest day, but after my pitty party and good nights sleep, things aren't stopping me from fighting.
Thursday, May 28, 2009
Hi everyone...it has been a pretty uneventful day. I did get word that the PET scan has been moved up to Monday instead of Wednesday. I will be glad to get the results from that and hopefully nothing will show up on it.
I had blood drawn last Friday and yesterday and both doctors got low hemoglobin levels, 8.4/8.3. For a woman, it should be at least 13. I don't think they want me to go into the chemotherapy treatment with low levels. They told me that my levels are right on the edge of needing a blood transfusion...go figure. Probably 2 bags and each one takes approximately 2 hours to transfuse so it sounds like an all day event. I am thinking that Dr. Cardenes will have something lined up for me either tomorrow when we see Dr. Robb and Dr. Clark or next Monday when I arrive for the PET scan.
This blood transfusion procedure may give me enough time to finish the "New Moon" book that hasn't got very much attention lately.
I also forgot to mention that during the radiation, it would most likely (definitely) push me into early menopause because the radiation would damage the ovaries...go figure again...hot flashes, mood swings (Jake doesn't think he will be able to notice any difference in my mood). We are trying to keep things upbeat. We have been given a lot to digest in the past 2 weeks and I am sure we will continue to be faced with more obstacles.
Rick is holding up, things have been pretty rough with the late planting season and his dad is not very well. He has been in and out of the hospital with heart trouble. Our kids seem to be handling things and we are trying to keep them as informed as possible.
Thanks for keeping us in your prayers, and I will continue to keep you informed. Judi
I had blood drawn last Friday and yesterday and both doctors got low hemoglobin levels, 8.4/8.3. For a woman, it should be at least 13. I don't think they want me to go into the chemotherapy treatment with low levels. They told me that my levels are right on the edge of needing a blood transfusion...go figure. Probably 2 bags and each one takes approximately 2 hours to transfuse so it sounds like an all day event. I am thinking that Dr. Cardenes will have something lined up for me either tomorrow when we see Dr. Robb and Dr. Clark or next Monday when I arrive for the PET scan.
This blood transfusion procedure may give me enough time to finish the "New Moon" book that hasn't got very much attention lately.
I also forgot to mention that during the radiation, it would most likely (definitely) push me into early menopause because the radiation would damage the ovaries...go figure again...hot flashes, mood swings (Jake doesn't think he will be able to notice any difference in my mood). We are trying to keep things upbeat. We have been given a lot to digest in the past 2 weeks and I am sure we will continue to be faced with more obstacles.
Rick is holding up, things have been pretty rough with the late planting season and his dad is not very well. He has been in and out of the hospital with heart trouble. Our kids seem to be handling things and we are trying to keep them as informed as possible.
Thanks for keeping us in your prayers, and I will continue to keep you informed. Judi
Wednesday, May 27, 2009
rectal ultrasound, ct scan
Hi all,
Today was a very long day. I have been probed and poked in every internal opening imaginable. The days started out at IU med center in the GI ultrasound dept. When we finished, Dr. Dewitt, was very straight forward that the tumor has been there for a while and it took up most of the interior of the colon. It is approx. 2" in height and is only letting a small amount of stuff through. It is at the very bottom of the rectum. It has penetrated the walls of the colon and there were 4 lymph nodes that looked suspicious. They took a biopsy of one of them to see if there is cancer there. The others were not able to be checked because of the thickness of the cancer tumor.
It was pretty tramatic to listen to Dr. Dewitt talk about the test results. From there, we went to the CT scan. It was to see if there was any sign of the cancer in any other organ. We did not get any results from that department at that time.
After that we met with the radiation oncologist, Dr. Cardenes, who did a very thorough exam on me, pap smear, rectal exam, breast exam. She specializes in ovarian and rectal cancer. She is the lead oncologist on the team. She was awesome. She was very to the point, but gentle. Her goal is to cure, not just fix. She told us that is was in advanced stages because it has gotten into the lymph nodes, yet it is treatable. Ahw ordered blood test that would be used as a baseline for my red and white blood cells, she ordered another CT scan to layout the location of radiation locations.
On Friday, I will see Dr. Robb, a rectal surgeon and also Dr. Clark, a chemotherapy oncologist. They will review my charts and test results and decide on their approach. Dr. Cardenes will begin with radiation/chemotherapy in combination starting on Tuesday. On Wednesday, I will have a PET scan, which is a more detailed scan for smaller signs of cancer cells that might be some where else in my body.
As of right now, we will start chemo/radiation on Tuesday. Chemo will be administered by a port and a pump of chemo that will be started on Monday and completed on Friday...I will get radiation every day from Monday through Friday. Every Wednesday, Dr. Cardenes wil do blood work to monitor my condition.
This process will last approx. 6 weeks, then approx 6 weeks of rest and then surgery, followed by another bout of chemo.
They are moving very aggressively, because they must. I really liked Dr. Cardenes and think that they have a very strong team of doctors working together.
The good news was that they didn't see anything in any other organs, the bad news is that the tumor is so close to the sphinkster muscle that they may not be able to salvage function...it's all about cure or function. This is the miracle part of the treatment...actually, it hasn't been my best friend for quite some time, so maybe I wouldn't miss it...I have way too much to live for: my daughter, my two sons and their futures...Say prayers and thanks for being there for me. Judi
Tuesday, May 26, 2009
Tuesday, May 26, preping for the ultrasound/CT scan
Hi all,
Today I am getting ready for a rectal ultra sound tomorrow. My test starts at 8am at IU Med Center. Then at 11 am I am going to have a CT scan. Later that after noon at 1pm, I will meet with Dr. Cardenes, a radation oncologist. Hopefully, she will be able to give us some news about the stage of the cancer, but if not, we should find something out on Friday when we meet with the surgeon.
On Friday, May 29, 12 noon, we meet with a rectal/colon surgeon that specializes with this kind (and location) of cancer. His name is Dr. Robb. These doctors are in the Cancer Pavilion which is attached to IU Med Center.
We met with a Lafayette oncologist last week, Dr. Harb, and he just gave us some insight as to the chemo/radiation process. If the cancer is in stage I or II, which is still contained in the walls of the colon, he would do a chemo/radiation combination for 6-8 weeks. This is to shrink the tumor so that maybe they would be able to salvage muscle and nerves so that I would have function in the rectum...since the tumor is located in the lowest 1/3 or the rectum. If the cancer is in stage III or IV, the chemo would be more aggressive. They would do 4 months of chemo, then proceed with the chemo/radiation combination for 6-8 weeks, let my body rest and then do the surgery. Surgery is a definite...they just want to try to shrink it to see if they will be able to reconnect the colon to the rectal muscles...
Hopefully all will go better than worse. Thanks for all of your prayers and I will keep you posted. Judi
Today I am getting ready for a rectal ultra sound tomorrow. My test starts at 8am at IU Med Center. Then at 11 am I am going to have a CT scan. Later that after noon at 1pm, I will meet with Dr. Cardenes, a radation oncologist. Hopefully, she will be able to give us some news about the stage of the cancer, but if not, we should find something out on Friday when we meet with the surgeon.
On Friday, May 29, 12 noon, we meet with a rectal/colon surgeon that specializes with this kind (and location) of cancer. His name is Dr. Robb. These doctors are in the Cancer Pavilion which is attached to IU Med Center.
We met with a Lafayette oncologist last week, Dr. Harb, and he just gave us some insight as to the chemo/radiation process. If the cancer is in stage I or II, which is still contained in the walls of the colon, he would do a chemo/radiation combination for 6-8 weeks. This is to shrink the tumor so that maybe they would be able to salvage muscle and nerves so that I would have function in the rectum...since the tumor is located in the lowest 1/3 or the rectum. If the cancer is in stage III or IV, the chemo would be more aggressive. They would do 4 months of chemo, then proceed with the chemo/radiation combination for 6-8 weeks, let my body rest and then do the surgery. Surgery is a definite...they just want to try to shrink it to see if they will be able to reconnect the colon to the rectal muscles...
Hopefully all will go better than worse. Thanks for all of your prayers and I will keep you posted. Judi
Thursday, May 21, 2009
Welcome to Judi's Kick Ass Cancer Blog
As all of you are aware, our friend, colleague, teacher, and overall person we like to tease, was diagnosed with colon cancer. As a way to communicate with everyone that loves her so dearly, I've created her a blog. This will enable all who are interested to check up on Judi daily or semi-weekly.
After reading what Judi has posted for the day or week, you should see a link at the bottom of the post/page that says, "comments." Please click this link and give her your well wishes. If you have any questions, please note them on the comments or email me at kinziel@delphi.k12.in.us.
Please pray for Judi for her strength, understanding, and patience. Please pray for the doctors for wisdom, perseverance, and their patience working with Judi! :)
I know that Judi has had some many calls from well-meaning friends and family. Maybe this is a way to see how she's doing throughout this process without us talking to her in person.
As of now, she plans to be at school tomorrow unless the doctor could see her for bloodwork.
Thank you for commenting for Judi!
After reading what Judi has posted for the day or week, you should see a link at the bottom of the post/page that says, "comments." Please click this link and give her your well wishes. If you have any questions, please note them on the comments or email me at kinziel@delphi.k12.in.us.
Please pray for Judi for her strength, understanding, and patience. Please pray for the doctors for wisdom, perseverance, and their patience working with Judi! :)
I know that Judi has had some many calls from well-meaning friends and family. Maybe this is a way to see how she's doing throughout this process without us talking to her in person.
As of now, she plans to be at school tomorrow unless the doctor could see her for bloodwork.
Thank you for commenting for Judi!
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