Wednesday, June 3, 2009

Hi all,
Well, I was really pumped after leaving the hospital yesterday, ate dinner, and then I was wiped out. Jordan blogged and gave you the most important information that we got yesterday. My chemo oncologist hunted me down in the radiation dept. to give us the news about the PET scan. I don't think I realized how those results were wearing on my family until I saw their expressions when we were told that no cancer showed up anywhere outside the rectum...what a relief, and a lot of tears. My radiation oncologist, Dr. Card was really upbeat also, but adament about shrinking the tumor...

We had a busy Monday and Tuesday. Monday we got to Methodist at 8am to get the chemo port put in. They didn't put me all the way under so I felt a lot of pushing...I am beeping, low battery on my pump...no fear, they trained us all on it yesterday. They must be cheap ass batteries...they were supposed to last 2 days, liars. Ok, I am back on track. So it was only supposed to take a short amount of time to get the port in and then I could have lunch and go on to my next appointment, the PET scan at 2:30. Of course that didn't pan out, they didn't even get me into surgery until 11am, then with the proceure and recovery, I barely made it to the PET scan on time, which was at IU. My family fasted with me, probably out of guilt...The PET scan didn't take too long, maybe 30 minutes. We left Indy after 5pm and I was whipped.

Tuesday I could eat and I didn't have to worry about fasting. We started at 10am in the IU med center, Infusion dept. for two bags of blood, the transfusion. It took about 5 hours. I got to eat and drink, watch TV, listen to my I pod, and read...I even napped. It was very comfortable. We left there, had a quick lunch and went to radiation oncology in the Cancer Pavilion right there in the basement. A Clarian Home Health care provider cleaned my port area, and prepped it for the chemo pump. She gave us instructions, how to work it, and did a lot of trouble shooting about the monitor...so far I have only tried to strangle myself once, in the middle of the night. It weighs about 4 lbs...not the prettiest fanny pack but there is room for lipstick and credit cards.

So by 3:30, my chemo was a drippin and we went into radiation...nothing to it. I just layed there. No zaps, sparks, neon lights, it was absolutely painless. I was really feeling pretty good when we left...everyone of my family members said that I had more color to my skin after the blood transfusion and the nurse thought I would feel the effects within 2 days. I still need an iron infusion. I think they are planning it on Friday morning, it will take 6 hours so they will do it after radiation.

The rest of the week my schedule is...today, Wednesday, radiation at 2 pm, Thursday radiation at 1 pm, Friday radiation early morning followed by the iron infusion, Saturday radiation early morning and the chemo pack comes off and they will do blood work to prep me for Mondays chemo order.

Then next week, my appointments should all be 2pm, we will start on Monday hooking up a new chemo pump followed by radiation, radiation on Tuesday, Wednesday, Thursday and Friday. A doctors appointment on every Wednesday with Dr. Cardenes, and then the pump comes off on Friday with blood work to prep for the following week...sounds pretty simple, yah.

Well, thanks for letting me ramble. You can't know how much I and all of my family appreciate all of the prayers and well wishes. I will keep you posted. Judi

7 comments:

  1. Judi,

    It is so good to hear about the WONDERFUL news you got yesterday. I am so tearfully happy for you and your family!

    Oh, and I like the name change to your blog. Very appropriate as we all know you do "kick ass" and will kick this too!!

    Love Ya!

    Jen

    ReplyDelete
  2. Hi Judi
    I am so happy to hear the good news about the scan.
    Please let me know if I can take you to an appointment or anything at all. I want to see you, but I know this is a hectic time and time for family, so I am letting you get settled in with all of this.
    Just to let you know you can still make me laugh. I was laughing outloud reading this.
    Keep the Faith.
    Love, Michelle

    ReplyDelete
  3. I am so happy to hear the good news!!! I think about you daily, and I have kept everyone posted at Dick Kreigs.... they all love you and are praying for you... I can def, see nothings changed.... meaning your upbeat personality!!!
    Love ya! Jamie (Brown) Leuck

    ReplyDelete
  4. Okay, I'm mad. I just posted and wrote you a very long detailed list of my day, and it erased it! Crap! So, here it goes again!

    So very glad to hear the news. We were all smiles today at school. Joe S. retired, you know, and at the end of the day, he gave a heartfelt prayer for you, others that are going through complex issues, students, our community and the referendum, and just other things that were very uplifting.

    Awards were funny; not the same without you to pick on. Neal got the "fashion" award for wearing his shirt on inside out. I got a toilet seat that read "Kinzie Time" on it. Norm M. came and roasted Joe and of course we know how funny he is. Joyce L. got the "hug" award from Brian T. After he hugged her, he gave her a bottle of sanitizer. Too funny! The meal was wonderful; Beth did an awesome job.

    We love and miss you. I'll see you soon. P.S. I, too laughed at your last post. I believe I snorted while laughing. Imagine that.

    Talk soon!

    ReplyDelete
  5. Judi, Couldn't sleep, thinking so much about you. I, too, love to see you still have your sense of humor! Am going to make a chicken and rice casserole to bring out tomorrow. Will have Rex drop it out tomorrow afternoon. Please let me know if there is anything else we can do for you. Love you lots and lots. Bonnie and Rex

    ReplyDelete
  6. ass batteries? I love you and the good news!

    ReplyDelete
  7. Hi Judi,

    I just found out about this site and wanted to let you know that you and your family are in my prayers. Through high school, you were one of the strongest and most positive people I knew. If anyone can beat this, I know that you can! Please let me know if there is anything at all I can do. You are in my thoughts.

    Kim Lank Rechkemmer

    ReplyDelete